Julian is currently inpatient at Riley Children’s Hospital fighting an infection, awaiting his 5th bone marrow biopsy. He has had countless transfusions, pokes and pricks throughout the last several years with his journey with IPP. He’s undergone more than most adults would in a 𝓁𝒾𝒻𝑒𝓉𝒾𝓂𝑒! After finally getting a diagnosis of MDS after years of searching for answers, this family is happy to have a plan. He continues to battle severely low platelets and white cells and the timeline of his transplant is complex while awaiting a match! He’s undergoing so many tests and has had countless hospital stays. He’s never let this battle steal his joy, and has no plans to! Every battle that he’s endured thus far, he’s remained positive and has always had a smile on his face! Julian has a been active in his church activities, Taekwondo, band, and is an avid learner. He will be home bound—until after he receives his transplant and makes a full recovery.
Julian's family would like to donate $12 from the sale of each t-shirt to The Cure Starts Now in Memory and Celebration of Adalynn Jessen, an Indiana Chapter of The Cure Starts Now dedicated to Addie Mae, a DIPG hero. You can read her story and donate directly here: https://thecurestartsnow.org/get-involved/chapters/indiana-adalynn-strong/